This is my web site about my story of how I adopted my MS.
In 2015, I was diagnosed with multiple sclerosis. Under the heading “My MS” you can read how the disease went and how I dealt with this bad news.
At the end of 2017, for the first time, I learned of the possibility of stem cell transplantation, which can stop MS with a probability of up to 83%. At the end of 2018, I made the decision to do this treatment.
Since there is no approval for this therapy, the health insurance companies do not cover the costs! That’s why I’ve collected over 50,000 € via fundraising – within just eight weeks I had the money together. On 18.02.2019 I flew to Moscow to the A.A Maximov Hospital and meet Dr. Fedorenko and got the treatment.
You can follow this whole history since fundraising began, treatment in Moscow and development today and continue in my BLOG. At the bottom of the page, just click on –OLDER-.
This was the text I wrote for the fundraising.
As long as I can walk, I can benefit from a stem cell transplant – after losing walking ability, this opportunity no longer exists. That’s why I have to do it now!
Multiple sclerosis is not a crisis or a detour that life strikes – MS is a dead end! And I’m in the middle of it.
… my prognosis is not good. Medicines are low in efficacy.
What you do not see:
- My disease is now quite rapid, I am employed with medication, but without success. Last year I was twice as far as this year, currently my current walking distance is 800 m on good days. My left arm has been fighting since the beginning of 2018 with a spasticity that often wakes me up at night. This spasticity is a bit worse every day, meanwhile I can only use my hand and fingers to a limited extent. On the whole, I feel dull, tired and tired and limited in my ability to concentrate. This is very stressful in everyday life, especially because it is improved neither by caffeine nor by enough sleep.
- My prognosis …. a dead end to hell. What I feel today is the iceberg. The tip is not far away: failure of the legs and arms. I’m trapped, so to speak, in my own body, which is increasingly failing – it’s like a nightmare.
The only realistic way out: stem cell transplantation.
Prognosis: 75% -83% success on standstill of the MS!
In some patients, symptoms even improve over time!
In Germany, this treatment is for MS without a cash register and therefore privately to finance.
- Cost factor: 50,000 euros!
… an unaffordable sum for me.
… I need your help. Every penny is my step out of this dead end.
Life is too valuable to give it up without a fight. But I can not win this fight alone. For this I need your support to realize the stem cell transplantation.
I am thankful from the bottom of my heart for every penny. It’s finally about my second birthday.
I already have an appointment on April 22, 2019 in Moscow. In Moscow, there is a special clinic that has been performing this treatment for over 20 years. Stem cell transplantation in MS is also available in Switzerland, Sweden, Israel, Canada, the United States, China or Mexico. Why I chose Moscow, you can read under the heading Stem Cell Transplantation.
If you, dear friends, neighbors, colleagues and acquaintances manage to give me this treatment, then I have a realistic chance of returning to a liveable life with good prospects.
If my symptoms stayed like they are now, I could definitely handle it with my optimism. The disease is now no longer in spurts, but has assumed a progressive course. That is, the symptoms no longer improve, but progress steadily. And pretty fast!
I am deeply grateful to each and every donor for giving me this chance to live.
A perspective as a nursing case is not worth living for me. Together with your help I can and will defeat the MS!